My Mom has a rare condition where she has a naturally grown shunt in her liver. The doctor said she was born with it. But over time and at her senior age, her body is beginning to work against it. This means her ammonia levels are always high. Now after, four years of pretty much the same treatment, the medicine (at times) is not enough.
This year, my sister and I, see her struggling more. There is a fine line on whether her behavior is all due to the ammonia or could be mental issues like a decline in her cognitive skills.
On a recent trip, my mom, sister, and I shared, she showed signs that concerned us. Signs that we were thinking could be dementia. Thanks to God on our return from trip, Mom had an appointment lined up with her neurologist. At this time, after an MRI, it has been ruled out.
Now that we know her condition is all due to the ammonia, we’ve been told to keep an eye on her different than before. When she hits those high levels, she’s unaware it’s happening. Life has changed once again. My sister and I no longer feel comfortable in leaving her alone. We also know the control we somewhat had in our day with her has taken another twist. Days, like I’m about to describe, made time stop.
First let me rewind a bit and describe our typical day. We would do some routine errands like going to Walmart. What typically would take 30 minutes would run into an hour or so. Trying to get her to do what she needed quicker time was my aim. I would lose my patience since it would take a while for her to decide what she was looking for or her physical movement would slow her. It wasn’t that I didn’t care about helping her do what she wanted or needed to do, it’s just that I wasn’t seeing the bigger picture.
Now turning to this more recent outing, we had already been in the store for some time. Her focus was off as she would drift in thought of why she was there. We were coming down a main aisle and approached a display of artificial flowers. These were no where on her list, but she wanted to suddenly get some for her room. As I see her reaching to grab some, it just hit me. The distance from me to her changed. I felt a pull in my heart. The conviction came in strong. That I wouldn’t want to be anywhere else. That these flowers were the only thing that mattered. And my whole vision by the grace of God showed me its importance.
I don’t care anymore. I don’t care how long it takes to do routine things with my mom. I don’t care that she asks me the same questions every time we go there or anywhere. “Should I buy this?” “Should I take my sweater?” “Do you think it’s cold in there?” “Have you checked the mail?”
I’m grateful too my sister and I are honest with her with this all. Explaining what the doctor found and what we’re seeing in her. She acknowledged she’s glad too even though we know she may not fully comprehend what it means.
My prayer now to Our Lord is that He will grace her with better health and that her condition does not get worse. That my family and I can be attentive to make her live the rest of her life with comfort and peace. And if my life, my sister’s life, family’s life is just to respond to her – that we push ours aside for her well being, then we do. I know we just want her to be cared for and safe.
I thank my husband and thank God a million times more because He knew how much I would need Ruben. Not just for the sake of my soul, but for this time in my life. My mom too.
Amen, amen, I say to you, when you were younger, you used to dress yourself and go where you wanted; but when you grow old, you will stretch out your hands, and someone else will dress you and lead you where you do not want to go.” – John 21:18
Help us Lord! Help us draw nearer to you. +++