On Mom’s time

My Mom has a rare condition where she has a naturally grown shunt in her liver. The doctor said she was born with it. But over time and at her senior age, her body is beginning to work against it. This means her ammonia levels are always high. Now after, four years of pretty much the same treatment, the medicine (at times) is not enough.

This year, my sister and I, see her struggling more. There is a fine line on whether her behavior is all due to the ammonia or could be mental issues like a decline in her cognitive skills.

On a recent trip, my mom, sister, and I shared, she showed signs that concerned us. Signs that we were thinking could be dementia. Thanks to God on our return from trip, Mom had an appointment lined up with her neurologist. At this time, after an MRI, it has been ruled out.

Now that we know her condition is all due to the ammonia, we’ve been told to keep an eye on her different than before. When she hits those high levels, she’s unaware it’s happening. Life has changed once again. My sister and I no longer feel comfortable in leaving her alone. We also know the control we somewhat had in our day with her has taken another twist. Days, like I’m about to describe, made time stop.

First let me rewind a bit and describe our typical day. We would do some routine errands like going to Walmart. What typically would take 30 minutes would run into an hour or so. Trying to get her to do what she needed quicker time was my aim. I would lose my patience since it would take a while for her to decide what she was looking for or her physical movement would slow her. It wasn’t that I didn’t care about helping her do what she wanted or needed to do, it’s just that I wasn’t seeing the bigger picture.

Now turning to this more recent outing, we had already been in the store for some time. Her focus was off as she would drift in thought of why she was there. We were coming down a main aisle and approached a display of artificial flowers. These were no where on her list, but she wanted to suddenly get some for her room. As I see her reaching to grab some, it just hit me. The distance from me to her changed. I felt a pull in my heart. The conviction came in strong. That I wouldn’t want to be anywhere else. That these flowers were the only thing that mattered. And my whole vision by the grace of God showed me its importance.

I don’t care anymore. I don’t care how long it takes to do routine things with my mom. I don’t care that she asks me the same questions every time we go there or anywhere. “Should I buy this?” “Should I take my sweater?” “Do you think it’s cold in there?” “Have you checked the mail?”

I’m grateful too my sister and I are honest with her with this all. Explaining what the doctor found and what we’re seeing in her. She acknowledged she’s glad too even though we know she may not fully comprehend what it means.

My prayer now to Our Lord is that He will grace her with better health and that her condition does not get worse. That my family and I can be attentive to make her live the rest of her life with comfort and peace. And if my life, my sister’s life, family’s life is just to respond to her – that we push ours aside for her well being, then we do. I know we just want her to be cared for and safe.

I thank my husband and thank God a million times more because He knew how much I would need Ruben. Not just for the sake of my soul, but for this time in my life. My mom too.

Amen, amen, I say to you, when you were younger, you used to dress yourself and go where you wanted; but when you grow old, you will stretch out your hands, and someone else will dress you and lead you where you do not want to go.” – John 21:18

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Help us Lord! Help us draw nearer to you. +++

Shake the dust

During these days as I’m dealing with a lupus flare triggered on by what is referred to as “overdoing it”, it has me reviewing my life as these occurrences often do.

For one, “overdoing it”. For someone else doing same task, may cause some minor fatigue. Nothing that a good nights rest won’t heal. For me, it puts me out of commission where I have no energy, get exerted easily, body aches (pangs in bones), and fever like spells. Thanks to God, mild, compared to others who suffer flares.

This week I thought I would have open to catch up with some friends and family. With Thanksgiving being next week and the busy holiday season beginning, I thought I could get to some undivided visits but this will have to wait.

With the flares and change in plans, it makes me revisit a repeated life encounter. A situation that for 17 years I’ve had to deal with multiple times and still find people who do not understand – the I’m sorry I have to cancel – or – I’m sorry I cannot attend. Either because I’m not feeling well or to pace myself for events that I had to prioritize.

When these situations come the most exchange that may happen is simply a decline to an invitation or cancel out to a casual meet up. If it permits, person asks, I will give more detail why, which helps me relieve stress. If it doesn’t happen, then I can most likely assume they don’t understand or don’t care. That may be harsh, but at this time in my life, I can basically read it.

So what does this mean? It means I no longer worry for the other person’s reception. For years, it would concern me. Worry me. Make me feel like I would have to make it up to them. Even if I felt I proved I truly cared about them or demonstrated that my relationship to them was important to me in multiple ways. But there are some who count things against you and just like that, nothing you did or who you are is enough to show you mercy.

This passage in Matthew 10 comes to mind when I struggle with letting go of the situation.

MATTHEW 10:12-14
As you enter a house, wish it peace.
If the house is worthy, let your peace come upon it; if not, let your peace return to you.
Whoever will not receive you or listen to your words—go outside that house or town and shake the dust from your feet.

In my bible study, it was taught this means to move on, let go. If you did what you can and they still don’t receive it, it’s not your problem, it is theirs!

Does it mean you don’t forgive them? No! Don’t remove yourself from them with a hardened heart. Give over the situation to the Lord, let Him take control. It just means you cannot waste your energy on something you no longer have peace with.

It has taken me a while to get to this point in my life. But as I get older with lupus, the challenges are tougher and at times I just go for what is easiest. Some will understand and some will not.

Thank God for those in my life who do understand.

Mexico

Breaking

Hearts around the world unite with yours

Each day

Sadness pours

Cries

Anguish

Prayers are sent

In all your beauty it does not fade

For through your people

His glory remains

Indelible Mark +

It was in a bible study class from my parish, where I first learned about the indelible mark.

Catechism of the Catholic Church 1121 : The three sacraments of Baptism, Confirmation, and Holy Orders confer, in addition to grace, a sacramental character or "seal" by which the Christian shares in Christ's priesthood and is made a member of the Church according to different states and functions. This configuration to Christ and to the Church, brought about by the Spirit, is indelible, it remains for ever in the Christian as a positive disposition for grace, a promise and guarantee of divine protection, and as a vocation to divine worship and to the service of the Church. Therefore these sacraments can never be repeated.

The clarity of this mark became known to me in my early 40s.  The whole time before that I had no idea what it meant.

Once I learned of this love that deciphers us from the world, it made my heart grow in a sense that the family, the Church, widen up to a bigger picture.

At times, when I walk around my city, or in the Church pews, or when I’m traveling, I often receive an emotion of peace and a strength because even though I can’t see that others are also marked I know among them they are around me.


For me, it’s a badge of honor, coat of arms,  military colors, a wedding band.  It helps me remember who I am to be.

In my family, I don’t recall anyone ever mentioning the significance of this mark and how very important I should keep myself reminded of it.  I can’t fully blame my immediate family because my parents carried their faith into our lives on how they received it.  No one dug deep into the faith.

I feel because of what God has given me, the knowledge I have to this point, the fire/zeal to learn about the faith, makes me responsible for sharing it. We all are called to.

What a precious gift we’ve been given in these sacraments where the ‘mark’ is given.  How even when we do the Sign of the Cross, it’s a pronounced action of what is already transfixed in us.

I recall a bible study that explains when the end of time comes, Our Lord will identify us by this indelible mark.

Revelation 7:4 I heard the number of those who had been marked with the seal, one hundred and forty-four thousand marked* from every tribe of the Israel.

The work from those with this mark have much to do.  Until the very end, our lives need to keep proclaiming for God’s will to be done.  Often at times in my life, I feel like I could be doing more.  But I recognize I have allowed fear to halt the work and all I can do is ask God to get me where He wants me to be and remove whatever barrier(s) are preventing me from living out my purpose.

I value more the fact that when I rise in the morning, the first thing I do is the Sign of the Cross.  This is how I begin my day and end it.

Lord God, this day, and everyday, may we live out the indelible mark. +

 

Patience and Prayer

There are things I do a bit different now that my mom lives with us. I find myself not participating in things as much which is somewhat a IMG_5900setback.

There were years after I was diagnosed with Lupus, where I didn’t want to commit to anything. One, it would cause paranoia, the thought of being around social scenes or people made me overwhelmed. Two, my lifestyle changed which meant I no longer was socializing the way I used to. I became more reserved. Mainly because I could no longer physically enjoy a “party” outing. Bars / dance clubs were no longer my thing.  My husband , thanks to his commitment to me, did what I wanted to do, so he too stayed away from people and events to stay with me.

However, in the past recent years, I was grooming myself to step out and stop being fearful. Making commitments whether taking classes, volunteer, simple friend dates, etc. I was feeling some confidence.

Lately, it feels like I’m not keeping that up and it’s starting to set me back to the old ways.

But today it hit me. Patience.

Life may have opportunities for me come June. In the meantime, I’ll do my best to get mom active. Use time to create. Just spend the time with her while my husband is working during the day. I need to redirect my focus and be joyful in my day. Not feel burden or weight of what I can’t change but look at what I can control.

Lately, I’ve been praying for the gifts of the Holy Spirit.

Praying for change in me. I know that by praying for this my Lord will use me for purpose. Sometimes I think, I’m not around many people how can I be useful. But you never know what His design is if you keep thinking of it in your terms.

This blog for one. I pray that it is a useful tool to get others to relate as a first step closer to hopefully reaching out to Jesus.

Pray too for the gifts of the Holy Spirit! You’ll become salt of the earth if you try! Sometimes we want to get from point A to point B so badly, but it might just take a bit longer. There’s a reason my life is where it’s at. I’m truly grateful I am able to do what I am able to do. Keeping myself purposeful in the capacity that I can.

Leticia Ochoa Adams

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