Tag Archives: lupus

Instrument of Your Hands

Lord, make me an instrument of your hands with care for my mother in her now season of life.

When she’s impatient, help me to be patient.

When she’s anxious, help me to be peace.

When she worries, help me to show faithfulness.

When she is angry, help me with self control and gentleness.

Lord, help me to not be overcome by the weight of this journey you have us on. For through it, it is not only to tend to her needs but lessons in selflessness and trusting your will I am to learn.

Shake the dust

During these days as I’m dealing with a lupus flare triggered on by what is referred to as “overdoing it”, it has me reviewing my life as these occurrences often do.

For one, “overdoing it”. For someone else doing same task, may cause some minor fatigue. Nothing that a good nights rest won’t heal. For me, it puts me out of commission where I have no energy, get exerted easily, body aches (pangs in bones), and fever like spells. Thanks to God, mild, compared to others who suffer flares.

This week I thought I would have open to catch up with some friends and family. With Thanksgiving being next week and the busy holiday season beginning, I thought I could get to some undivided visits but this will have to wait.

With the flares and change in plans, it makes me revisit a repeated life encounter. A situation that for 17 years I’ve had to deal with multiple times and still find people who do not understand – the I’m sorry I have to cancel – or – I’m sorry I cannot attend. Either because I’m not feeling well or to pace myself for events that I had to prioritize.

When these situations come the most exchange that may happen is simply a decline to an invitation or cancel out to a casual meet up. If it permits, person asks, I will give more detail why, which helps me relieve stress. If it doesn’t happen, then I can most likely assume they don’t understand or don’t care. That may be harsh, but at this time in my life, I can basically read it.

So what does this mean? It means I no longer worry for the other person’s reception. For years, it would concern me. Worry me. Make me feel like I would have to make it up to them. Even if I felt I proved I truly cared about them or demonstrated that my relationship to them was important to me in multiple ways. But there are some who count things against you and just like that, nothing you did or who you are is enough to show you mercy.

This passage in Matthew 10 comes to mind when I struggle with letting go of the situation.

MATTHEW 10:12-14
As you enter a house, wish it peace.
If the house is worthy, let your peace come upon it; if not, let your peace return to you.
Whoever will not receive you or listen to your words—go outside that house or town and shake the dust from your feet.

In my bible study, it was taught this means to move on, let go. If you did what you can and they still don’t receive it, it’s not your problem, it is theirs!

Does it mean you don’t forgive them? No! Don’t remove yourself from them with a hardened heart. Give over the situation to the Lord, let Him take control. It just means you cannot waste your energy on something you no longer have peace with.

It has taken me a while to get to this point in my life. But as I get older with lupus, the challenges are tougher and at times I just go for what is easiest. Some will understand and some will not.

Thank God for those in my life who do understand.

Time

Lately, I’ve been in some kind of mode of embracing the present.  It’s not that I have never had these moments before like when at a family gathering, or a trip, or an outing.  I have had many that I’m thankful Our Lord push that button in me to recognize so that I can grab onto it.  But lately, it seems to be more prevalent.

As I mentioned before, my Mom lives with us.  It’s now going on 3 years.  However, these last months, she’s been staying with my sister in Tucson. My sister and I both knew this is how it would probably work out with my sister now living in Tucson. It gives Mom the flexibility of having both of our homes to live. Tucson is her hometown and we both want her where she’ll have most peace.

So in this time, Mom not being home with me, I have the time to work on things or be a part of things that I have held off. That’s mainly my issue since I tend to give my attention fully to her when she’s with me.  I have not mastered to balance my life and responsibility of her very well.

These days, in whatever it is I’m doing, I find myself stopping to a moment or fixate on what I’m doing more often. It can be anything from a physical ability or the wind hitting my skin. A memory from childhood or a book I’m reading that will make me stop and center on it.

When I recently saw my Mom who I hadn’t seen for three weeks, I just held onto her. Recognizing how I really have missed her. Thanking God to have the time shared.

I’m not sure I fully understand why it’s happening.  Part of it, I admit, could be the world news.  Random shootings, natural disasters, family suffering…I also think about where my husband and I are in our lives.  I’m 46 yrs and he’s 51. The clarity is there that we are letting go of that youthful time and entering the next season.  We have lived in our first home for 19 years. And with some recent home projects we have done, I have remembered the memories we have had or our marriage has had living here.  Also being aware of some blessed wisdom we have received and awareness of faith in our lives has added to that present moment thought process.  In no way am I saying that we are a well oiled machine and got it all right, we are learning each day. But to know and use that basic toolbox of faith and apply it to our lives, means so much at this stage in our lives.

I take this current situation in my life as a gift. I’m sure many of us have it.  I’m going to try record about it more.  With time passing by fast it seems, I at times get a little anxious because I physically can’t see all I would like. I truly love each one who I know on the most part understand. I can’t get to everyone in the sit down way I would like. Most of the time, I have to compromise how I use my energy. But I can for sure say, I have remembered a life event or given a prayer for each one in present moments each day as I think of them.

I just found this article.  I’m sure I’ve learned about this before, but lost its significance.  I’m linking it to share so that it may guide you too.

It’s from Catholic News Agency titled ‘Are you missing the gift of the present?’

https://www.catholicnewsagency.com/cw/post.php?id=67

Thank you Lord for giving me this gift I didn’t first recognize as one. Now I will be sure to embrace it even more.

Reveal

Lately, I’m torn on whether to make known my identity.

When I first started this blog, I never had intent to give more information about myself.  Only wanting to share my experiences to help others in their journey of faith.

Does sharing identify help or does it change focus to look at me and see me instead of my life story?  Because if you were to see a picture of me, you may not see that I have had the life I had or have now.

From this blog, I also maintain an Instagram account.  It gives a quick feed to what is happening in your blog or just simple insights.  Without intending it to be, it has brought a community I had no idea existed.  I receive much encouragement from it, as well as, I learn more about the faith that what I thought could be possible from this social media.

Honestly, revealing does have to do with the issue of confidence for me.  Something I’ve struggled with all my life.  The rejection, people misconstruing your intentions with pride, the pressure to portray who you truly are.  The Instagram account wasn’t meant to fit a mold with other Catholic women, which I think (at times) accounts appears to show.  I’m not saying it shouldn’t because I think it does benefit some.  For me, the account is to express my faith in many areas of how I practice it.

For now, I think I will leave my account the way it is.  I enjoy it and love to share. If it is fit for me to reveal, for a circumstance or situation , I will decide at that time.  Until then, I’m thankful for those who follow this blog and Instagram account.

 

 

Poem X

In this time
I find I
Though numbing as flight in the air
My mind goes
My body foes
God is always near
No drug I took
Just the humdrum of this thing
That comes over me
Stalled like someone who has tripped
Pulling, crawling
Coming to
‘Til a song breaks through
My dependence is new

Ground control to Major Worry

Control.

The battle of ourselves and understanding Our Father who is in control.

Repeatedly throughout my adult life, I have dealt with self control.  I had life experiences that only made me teach myself to depend on my responding emotions.

Mechanisms to guard my heart from hurt, pain, confidence, courage.

As I explained in my blogs of transformation from my lupus diagnosis, is where the self control changed.

However, even after years of growing deeper into my Catholic faith, being attentive and obedient, I find myself cave in at times and throw myself back to the pits of self control.

Mostly, when it comes to family issues that grab me with anxiety or worry. Things I wish I could help, but know I physically have no power.

Why is that?

At times, I want to blame it on the lupus. Stress is a factor of what causes lupus flares.  I figure, my body does not have any tolerance for worry so as soon as I respond to it in my body, I shut down.

Then, I think, it's my age.  Yes, my age.  I'm older so any ounce of worry, I shrivel up.  That's got to be it too… right?

What I do know is that when I find myself in worry over something, I do feel the Holy Spirit taking hold of me.  I will remember to turn it over to Jesus and ask Him to take it.  It may not always be that immediate moment, but it does happen.

What I want to attain, is that I don't cause 'me' to happen at any situation in life.  I desire my soul to respond by His holy will and just issue a sense of peace to whatever comes my way.  I mean, I imagine that's what Pope Francis does and our religious priests and nuns…right?  They always look so at peace.

Is this anxious/worry thing a Cross? I wonder, but don't put too much thinking into it since I'm convicted to not focus on it.

In my family, there are many plagued by worry. To the point where it transforms into high blood pressure.  Thankfully, I do not have that. But I know my family is prayerful. And whenever something strikes us, I am the one to say to pray.  We all do to each other at times. Thanks be to God!!

At this stage in my life, I'm thankful Our Lord helps me to recognize it. I'm thankful my prayer is always asking God to help and take the issue/situation.  That I know I'm not stranded in the desert.

And that's just it!

That we live this life continually knowing we are not god.  Life will always give us stress.  I am not perfect. Will I ever be? That's not my concern either.  But that I get stronger in what I know Jesus wants from me.

"Be thou my Wisdom" +++

"I have told you this so that you might have peace in me. In the world you will have trouble, but take courage, I have conquered the world.” – John 16:33

Ocean heals

Since I was about 9 years old, I spent my summer vacations in a simple town known as San Clemente.  It has grown much since I was 9.  Now it’s a vacation destination, many tourists, and pricy living. I was fortunate to have family who lived there so staying for months was no expense problem for my mom and dad. My aunt and uncle lived minutes away from the beach. I was blessed to experience the ocean air and mild summers. The thing is I didn’t know I was blessed. 

I always thought when I got to college age, that I would reside in Orange County and attend USC.  That all ended when a 6.2 earthquake happened and my foundation shook. Scared me to the core. But even after the earthquake, I would still go visit my family each summer. I just decided I could not live there anymore.

I always felt so comfortable being there. That had a lot to do with my aunt and cousin who treated me like I was a part of their family.   During my junior high years this became even more important to me.  My mom and dad divorced and all that I thought was secure was broken. My time there healed me. Going to the beach with my cousin, driving around to quaint little shops, eating ice cream at the parlors. My aunt would also make these wonderful dinners that during one summer, let’s just say I grew.  Their home and this beach town were refuge for me. When things were rough in my life, the San Clemente beach and my family helped me.

Fast forward, my bout with CDiff also received recompense from the beach.  In 2008, thanks to my dear husband, I spent many months with my San Clemente family trying to find peace. I went there either with my mom or on my own.  I had terrible anxiety and fear. I remember waking up at times and feeling the urge to take a drink of alcohol at 9 am. That had never happened to me before. I would also have panic attacks and need to take deep breaths to know I was OK.  It was horrible.

So there would be many moments where I would just drive by myself and just sit there at the beach or walk on the pier trying to recover. Crying and pleading and asking the Lord to free me. 

Then this is when I would begin to envision myself alone in the ocean completely immersed and feeling as though the water was Jesus’ mercy.  Letting go of all that I was holding onto and just floating in His care.   The image would give me comfort and allow me to breathe again.

That is why I believe today I have such a deep love for the ocean. I don’t just view it as water or a place to vacation to but I correlate it to God and how vast and wide His love is for us and how powerful He is over any pain.

Hand over your worry, fear, anxiety to Jesus and in replace ask Him to give you His peace, patience, and trust. Fall into His mercy and relax yourself in His protection. +++